Clinical Monitoring Practices Among Adult Patients with Pyruvate Kinase Deficiency Who Have Never Been Transfused

Carl Lander, our Research Director, is a member of the Peak registry steering committee, which published an abstract at the American Society of Haematology Meeting in Orlando, Fl in December 2025. As senior author, Carl had significant input into the develeopment of this abstract.

The abstract used both the PK deficiency natural history study and Peak registry data to assess compliance with the 2024 PK deficiency diagnosis and management international guidelines. It was concluded that for the period of time the data covers, the monitoring of complications falls short of the recommendations in the guidelines.

The full abstract can be found by clicking on the image below. All rights remain with ASH as the publisher of the journal Blood.

Clinical Monitoring Practices Among Adult Patients with Pyruvate Kinase Deficiency Who Have Never Been Transfused

We would like to thank Tamara Schryver, Jill Welle and Conor Stoebner for their service to PKDIA

They have to decided to move on from their roles on the Board of Directors we wish them well in their future endeavours

The Pyruvate Kinase Deficiency International Alliance