Community and Support
PKD Support Networks
Know PK Deficiency
The Know PK Deficiency Facebook community is sponsored by Agios Pharmaceuticals, Inc. to help raise awareness of the rare disease pyruvate kinase (PK) deficiency.
People with Pyruvate Kinase Deficiency
The Facebook page is a private page for patients and parents who are supporting one another by sharing the knowledge they have accumulated from their experiences with hereditary pyruvate kinase deficiency (PKD).
Pyruvate Kinase Deficiency Awareness
A website to promote awareness of Pyruvate Kinase Deficiency, a rare form of Hemolytic Anemia
Know PK Deficiency - Living with PKD Video Series featuring patients stories - Youtube Channel
Taking Control: Gaining Independence as a Young Adult with a Rare Disease (printable brochure)
Robyn Silverton and her life with PK deficiency - Video