PKD Education
PKD Fast Facts for Patients and Supporters
Understanding PK Deficiency Brochure (printable pdf)
Information for Caregivers Brochure (printable pdf)
A comprehensive publication on nutrition in two inherited haemolytic anaemias; thalassaemia and PKD, aimed at offering a critical review of existing knowledge, benefiting both haematologists and dietitians in managing patients with these conditions. (printable pdf)
A quick reference guide for school staff and other adults in your loved one’s life. (printable pdf)
Listing of physicians with experience treating pyruvate kinase deficiency. Last updated July 2021. (printable pdf)
White Paper - Pyruvate Kinase Deficiency - Reflections on the Patient Experience to Support Treatment and Care
Voice of the Patient Report 2019 (printable pdf)
Monitoring your PK deficiency over time (printable pdf)
Management of pyruvate kinase deficiency in children and adults, Blood, September 2020 | Volume 136, Number 11
Doctor Discussion Guide (printable pdf)
Transfusion-Induced Iron Overload - Medscape - May 2021
Autosomal Recessive Inheritance
Who should be eligible for gene therapy clinical trials in red blood cell pyruvate kinase deficiency (PKD)?: Toward an expanded definition of severe PKD
Prevalence of Pyruvate Kinase Deficiency: a systemic literature review. April 2020 (printable pdf)