Pyruvate Kinase Deficiency International Alliance
Enhancing the quality of life for patients with PK deficiency and their families by providing awareness, expanding education and promoting advocacy.
Featuring:
Bridging the PK Deficiency Community
We are proud to announce the merger of the two primary nonprofits serving the PK deficiency community, Pyruvate Kinase Deficiency Foundation and Thrive with Pyruvate Kinase Deficiency Organization, to one combined organization entitled Pyruvate Kinase Deficiency International Alliance (PKDIA). Pyruvate kinase deficiency is an ultra-rare, genetic, hemolytic anemia that affects people and families of all ethnicities from around the world. Knowing that families living with PKD have contacted us from Tibet to Australia, Brazil to Canada, we are excited to extend our work internationally with hopes of finding country-specific PKD ambassadors.
With a legacy of collaboration, PKDF and Thrive with PKD have worked hand-in-hand to support the PKD community, extending their efforts worldwide. In 2024, PKDF and Thrive with PKD:
Co-authored nutrition guidelines “Nutrition in Thalassemia & PKD: A Guidelines for Clinicians”
And co-hosted the 2nd International PKD Conference in Minneapolis, MN, with over 140 people in attendance.
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World Blood Donor Day
Give Blood, Give Hope: Together We Save Lifes
People with Pyruvate Kinase Deficiency thank all the family and anonymous blood donors for giving blood.
Many of us rely on your donations for every stage of life and we are forever grateful.
Please consider donating blood if you haven't already.
Pyruvate Kinase Deficiency affects at least one in 100,000 to one in 300,000 individuals.
